Coronavirus: Motor Nurone Disease

Thank you for contacting me about Motor Neurone Disease (MND) and Coronavirus.

In addition to the 1.5 million people identified in England with conditions already centrally identified, GPs are currently identifying other patients who are clinically extremely vulnerable.  These patients will be contacted directly and will be advised to shield.  

This means that if someone with MND is identified by their GP to be clinically extremely vulnerable they will be added to the list, and will be able to access the cross-Government support package.

Given the range of disease progression and severity of symptoms in people with MND, their blanket inclusion in the clinical extremely vulnerable group would not be appropriate.  This is true for those at both the most-mild end of symptoms, and those in the last few months of life.

If you believe you, or someone you know, should be included in the extremely vulnerable group, you are advised to contact your GP.